Description: Patient Worthy provides current and continuous coverage of rare disease patient experiences news and events through an online platform and broad social media presence Through education awareness and a touch of humor Patient Worthy helps patients caregivers and support persons by providing relevant often inspirational stories We believe rare disease patients are people not a diagnosis To improve the quality of life of those affected by rare disease we encourage collaboration among patient organizations scientists pharmaceutical companies and more Here at Patient Worthy if we are not learning to live with a chronic illness or rare disease ourselves we are loving or working with someone who is It is through this perspective research and our passion for rare disease awareness that we bring you Rare Patient News Well DoneContacts Us PatientWorthy or Contributepatientworthycom